1、 ETSI ES 202 642 V1.1.1 (2010-09)ETSI Standard Human Factors (HF);Personalization of eHealth systemsby using eHealth user profiles (eHealth)ETSI ETSI ES 202 642 V1.1.1 (2010-09) 2Reference DES/HF-00108 Keywords health, HF, interface, MMI, user ETSI 650 Route des Lucioles F-06921 Sophia Antipolis Ced
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6、 to reproduction in all media. European Telecommunications Standards Institute 2010. All rights reserved. DECTTM, PLUGTESTSTM, UMTSTM, TIPHONTM, the TIPHON logo and the ETSI logo are Trade Marks of ETSI registered for the benefit of its Members. 3GPPTM is a Trade Mark of ETSI registered for the bene
7、fit of its Members and of the 3GPP Organizational Partners. LTE is a Trade Mark of ETSI currently being registered for the benefit of its Members and of the 3GPP Organizational Partners. GSM and the GSM logo are Trade Marks registered and owned by the GSM Association. ETSI ETSI ES 202 642 V1.1.1 (20
8、10-09) 3Contents Intellectual Property Rights 5g3Foreword . 5g3Introduction 5g31 Scope 7g32 References 7g32.1 Normative references . 7g32.2 Informative references 8g33 Definitions and abbreviations . 8g33.1 Definitions 8g33.2 Abbreviations . 9g34 Overview of the personalization and profile concept .
9、 10g34.1 Introduction 10g34.2 What is a profile? . 10g34.3 Organization of the profile content . 11g34.4 Profile extensions . 12g34.4.1 Proprietary profile extensions . 12g34.4.2 Additional standardized information and preferences 12g34.5 Templates . 12g34.6 Profiles and user views . 12g34.6.1 Situa
10、tions, context and the scope object . 12g34.6.2 Avoiding conflicts by using templates 13g34.7 Context information . 14g34.8 Generic profile architecture 15g35 Model . 16g35.1 General user profile model . 16g35.2 Extensions to the model . 18g35.2.1 Introduction. 18g35.2.2 Services and device . 18g35.
11、2.3 Reference to alternative definitions and classifications 19g35.2.4 Further extensions to Profile-Item-Attributes class 20g36 Stakeholders and their healthcare roles 20g36.1 Stakeholders . 20g37 Profile management information and preferences 22g37.1 Addressable entities and group . 22g37.2 Profil
12、e related information and preferences . 23g37.2.1 Priority levels 23g37.3 Requirements for information sharing and privacy 24g37.3.1 Privacy of information held in electronic health records 24g37.3.2 Privacy of information stored in a user profile . 24g37.3.3 Information acquisition and sharing . 24
13、g37.3.4 Validation of profile data items 25g37.3.5 Accreditation of profile read/write access 25g37.4 Sources . 25g37.5 Roles . 26g37.5.1 Profile system roles . 26g37.5.2 eHealth related roles and sharing of profile data 27g38 Client related information 29g38.1 Introduction 29g38.2 Personal informat
14、ion 29g38.3 Health information . 32g3ETSI ETSI ES 202 642 V1.1.1 (2010-09) 49 Situation and context related information 34g39.1 Introduction 34g39.2 Highlevel health condition . 34g39.3 Place types and locations 35g39.4 Mood and activity . 35g310 Service and device category related information and p
15、references . 36g310.1 Introduction 36g310.2 Video preferences . 37g310.3 Numeric output . 37g310.3.1 Notifications and alerts . 38g310.4 Usability and accessibility 38g3Annex A (informative): Profile content specification 39g3A.1 Structure of profile items 39g3A.2 Description . 39g3A.3 UID . 39g3A.4
16、 Reference to standards 39g3A.5 Instances . 39g3A.6 Type 40g3A.7 Value range 40g3A.8 Default value 40g3A.9 Technical specification . 40g3A.10 Related field . 40g3Annex B (informative): Background 41g3B.1 eHealth and telecare . 41g3B.2 eHealth standardization 42g3Annex C (informative): Scenarios . 45
17、g3C.1 Bert going to the bookies 45g3C.2 Sally has early onset of dementia . 47g3History 49g3ETSI ETSI ES 202 642 V1.1.1 (2010-09) 5Intellectual Property Rights IPRs essential or potentially essential to the present document may have been declared to ETSI. The information pertaining to these essentia
18、l IPRs, if any, is publicly available for ETSI members and non-members, and can be found in ETSI SR 000 314: “Intellectual Property Rights (IPRs); Essential, or potentially Essential, IPRs notified to ETSI in respect of ETSI standards“, which is available from the ETSI Secretariat. Latest updates ar
19、e available on the ETSI Web server (http:/webapp.etsi.org/IPR/home.asp). Pursuant to the ETSI IPR Policy, no investigation, including IPR searches, has been carried out by ETSI. No guarantee can be given as to the existence of other IPRs not referenced in ETSI SR 000 314 (or the updates on the ETSI
20、Web server) which are, or may be, or may become, essential to the present document. Foreword This ETSI Standard (ES) has been produced by ETSI Technical Committee Human Factors (HF). Intended readers of the present document are: eHealth service providers; device manufacturers; software developers; r
21、esearchers. Introduction Adapting an eHealth system to the individual user is essential for making it safe and easy to deploy and to use as an effective support to independent living. Personalization can thus enhance the users trust in the eHealth systems, and make them more readily accepted. Person
22、alization can range from simply setting an alarm volume according to the users hearing abilities and the ambient noise level, to the complex tailoring of the users entire environment, including the eHealth services and devices. The present document specifies a standard for personalization of eHealth
23、 systems. The personalization is achieved by maintaining and updating the user profile, consisting of a set of user related information, preferences and rules. The user profile depends on and is dynamically adapted to the users context, preferences, physical and mental abilities, and other relevant
24、parameters. The profile can then be used by eHealth systems to ensure an uniform user experience. The standard builds on the personalization and user profile concept described in EG 202 325 i.1. The generic personalization architectural framework is described in TS 102 747 2 and the preferences for
25、a wide range of services and devices (not particularly related to eHealth) are described in ES 202 746 1. The Design for All approach has been adopted in the present document. It means that accessibility is considered as something that can benefit people whether or not they have disabilities. The UR
26、I root is upm-ns, identified by xmlns:upm-ns=http:/uri.etsi.org/upm. The additional namespace which is health specific (xmlns:health-ns in the list below) has been specified in the present document. The other additional namespaces listed below are common with those listed in ES 202 746 1. ETSI ETSI
27、ES 202 642 V1.1.1 (2010-09) 6Additional namespaces are: xmlns:profile-management-ns=http:/uri.etsi.org/upm/profile-management; xmlns:personal-information-ns=http:/uri.etsi.org/upm/personal-information; xmlns:connectivity-preferences-ns=http:/uri.etsi.org/upm/connectivity-preferences; xmlns:interacti
28、on-preferences-ns=http:/uri.etsi.org/upm/interaction- preferences; xmlns:notifications-ns=http:/uri.etsi.org/upm/interaction-preferences/notifications; xmlns:communication-handling-ns=http:/uri.etsi.org/upm/communication-handling; xmlns:consume-content-ns=http:/uri.etsi.org/upm/consume-content; xmln
29、s:way-finding-ns=http:/uri.etsi.org/upm/way-finding; xmlns:health-ns=http:/uri.etsi.org/upm/health. ETSI ETSI ES 202 642 V1.1.1 (2010-09) 71 Scope The present document provides a standard relevant to management of user profiles for personalisation of eHealth systems and services according to users p
30、references and needs. Personalization of eHealth systems includes personalization of the eHealth information and interaction. It specifies standardized elements of profiles including information and preferences. Profile aspects within the scope of the present document are: those provided for the pri
31、mary benefit of the end-user; those where the end-user has rights to manage the profile contents; those where the end-user has the right to have a dialogue with the information owning stakeholder. 2 References References are either specific (identified by date of publication and/or edition number or
32、 version number) or non-specific. For specific references, only the cited version applies. For non-specific references, the latest version of the reference document (including any amendments) applies. Referenced documents which are not found to be publicly available in the expected location might be
33、 found at http:/docbox.etsi.org/Reference. NOTE: While any hyperlinks included in this clause were valid at the time of publication ETSI cannot guarantee their long term validity. 2.1 Normative references The following referenced documents are necessary for the application of the present document. 1
34、 ETSI ES 202 746: “Human Factors (HF); Personalization and User Profile Management; User Profile Preferences and Information“. 2 ETSI TS 102 747: “Human Factors (HF); Personalization and User Profile Management; Architectural Framework“. 3 IETF RFC 4480: “RPID: Rich Presence Extensions to the Presen
35、ce Information Data Format (PIDF)“. 4 CLDR: “Unicode Common Locale Data Repository“, “measurement-unit“ supplemental data. NOTE: See http:/cldr.unicode.org/. 5 ISO 80000-1:2009: “Quantities and units - Part 1: General“. 6 vCard: The Electronic Business Card, Version 2.1. NOTE: See: http:/www.imc.org
36、/pdi/vcard-21.txt. 7 ETSI TS 102 334 (all parts): “Network Address Book on fixed network“. 8 XML Schema Part 2: Datatypes Second Edition (October 2004). NOTE: See http:/www.w3.org/TR/xmlschema-2/. ETSI ETSI ES 202 642 V1.1.1 (2010-09) 82.2 Informative references The following referenced documents ar
37、e not necessary for the application of the present document but they assist the user with regard to a particular subject area. i.1 ETSI EG 202 325: “Human Factors (HF); User Profile Management“. i.2 ETSI EG 202 421: “Human Factors (HF); Multicultural and language aspects of multimedia communications
38、“. i.3 ETSI SR 002 564 (V2.0.0): “Applicability of existing ETSI and ETSI/3GPP deliverables to eHealth“. i.4 eHealth Ministerial Declaration: “The Contribution of ICT to Health. Ministerial Conference and Exhibition“; Brussels, 22-23 May 2003. NOTE: Available at: http:/ec.europa.eu/information_socie
39、ty/eeurope/ehealth/conference/2003/doc/min_dec_22_may_03.pdf. i.5 WHO: “International Classification of Diseases (ICD)“. NOTE: Available at: www.who.int. i.6 WHO: “International Classification of Functioning, Disability and Health (ICF)“. i.7 WHO: “International Classification of Health Intervention
40、s (ICHI)“. i.8 WHO: “Guidelines on the use of International Nonproprietary Names (INNs) for Pharmaceutical Substances“. i.9 Oh H, Rizo C, Enkin M, Jadad A: What Is eHealth (3): “A Systematic Review of Published Definitions“, J Med Internet Res 2005;7(1):e1. NOTE: See http:/www.jmir.org/2005/1/e1/. i
41、.10 Eysenbach G. “What is e-health?“ J Med Internet Res 2001 Jun 18;3(2):e20. NOTE: See http:/www.jmir.org/2001/2/e20/. i.11 Mitchell J. “From telehealth to e-health: The unstoppable rise of e-health“, Canberra, Australia: Commonwealth Department of Communications, Information Technology and the Art
42、s (DOCITA); 1999. i.12 “Integrating Community Equipment Services (ICES)“ (January 2005): “Telecare“. i.13 Doughty, K., Cameron, K. and Garner, P. (1996): “Three generations of telecare of the elderly“ Journal of Telemedicine and Telecare 2(2): 71-80. i.14 ISO 215: “Documentation - Presentation of co
43、ntributions to periodicals and other serials“. 3 Definitions and abbreviations 3.1 Definitions For the purposes of the present document, the following terms and definitions apply: accessibility: ensuring that all sectors of the community have equal access to communications and online information adm
44、inistrator: person who defines profiles with profile data NOTE: Also known as profile administrator. ETSI ETSI ES 202 642 V1.1.1 (2010-09) 9carer: individual who provides health or social care to the client NOTE: Both professional and informal carers are included in this category. client: individual
45、 receiving the eHealth service, to support independent living and/or using eHealth services for the care of his or her own health and wellbeing eHealth service provider: provider of eHealth services to a group of people formal carers: professional providing care for the client health/care profession
46、als: professionals (e.g. clinicians, doctors, occupational therapists, social workers) involved in the assessment of clients and delivery of more specialist care than that provided by carers informal carers: relatives, neighbours, friends or volunteers providing care for the client profile: set of u
47、ser related information, preferences, rules and settings which affects the way in which a user experiences terminals, devices and services NOTE: The use of the word profile in the present document implies user profile unless otherwise stated. profile provider: entity (e.g. company such as a service
48、provider, organisation such as a special interest or affinity organization) that provide profiles and associated services rule: statement that can be interpreted by the profile system to produce or limit an action state: aspect of users and their devices and services template: set of rules and setti
49、ngs provided by an entity as a starting point for the user for the creation of their profiles usability: extent to which a product can be used by specific users to achieve specific goals with effectiveness, efficiency and satisfaction in a specified context of use user: person using ICT services user profile: See profile. 3.2 Abbreviations For the purposes of the present document, the following abbreviations apply: ACR-NEMA American College of Radiology - National Electric
